Community palliative care is a priority for provincial and territorial governments, but few Canadians receive formal palliative care outside of hospitals. This project is working to improve the operational processes in home-based palliative care so that individuals living with life-limiting illness receive the care they need at home or in their community. We are engaging patients, caregivers, home care providers, palliative care experts and policy planners to determine gaps in home-based palliative care, identify leading practices and support the adoption of innovative programs across the country.

Supported by a health funding contribution agreement from Health Canada, the project builds on “The Way Forward: An Integrated Palliative Approach to Care”. Using a collaborative engagement approach, we are identifying gaps and opportunities for operational process improvement in home-based palliative care, focusing on four specific areas:

  •  Translating advance care plans and health care wishes into the planning and delivery of services in the home
  • Early and ongoing identification of the needs and strengths of patients and caregivers and ways to incorporate assessment results into shared care plans
  • Strategies and methods to ensure effective and efficient communication, shared decision-making and care coordination
  • Processes to ensure timely access to, efficient management of and safe disposal of equipment, supplies and medications in the home

An advisory group provides expertise and guidance on the project’s activities. Throughout the two-year project we will be reaching out to and engaging with frontline home care provider organizations, administrative bodies (regional health authorities), policy makers, patients, caregivers, primary health care teams (involved in home-based palliative care) and specialty palliative care teams. We encourage NGOs involved in palliative care education and training to attend events and learn from project participants. We are involving cultural groups and groups representing LGBTQ communities through direct consultations.

News

Minister Petitpas Taylor announces funding to help strengthen palliative care
May 10, 2019
Three organizations that focus on palliative care will receive more than $4.5 million in funding to support palliative care initiatives. Canadians deserve to live out their lives in comfort and with dignity. Learn more

Home care leaders meeting in Charlottetown, PEI
October 1, 2018
Home-based palliative care innovations in Canada showcased at two-day event
Home care leaders from across Canada are meeting at the CHCA’s two-day summit on October 1 and 2, 2018. A special feature of the summit is the live-streaming of presentations outlining 12 leading practices in operational excellence focused on home-based palliative care.  Download the Release

PROJECT DELIVERABLES

Mapping

the palliative care experience (in Canada)
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Identifying

innovative practices in home-based palliative care.
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Showcasing

four leading initiatives as High
Impact Practices.
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Spreading

and scaling a High Impact Practices through the CHCA SPRINT Implementation Collaborative.
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Creating

an Implementation Framework and User Guide to support further spread and scale. Deliverable 2020

Conducting

a systematic review of access, management and disposal of medications in home-based palliative care. Deliverable 2020

Quick Facts

75% of Canadian would prefer to die in their home. But only 25% die in the home. The Way Forward, Harris/Decima survey, 2013. Canadian Hospice Palliative Care Association, 2012

99% of palliative home care clients had family or friends helping to care for them, making it possible for them to stay at home. 1 in 3 caregivers reported distress. Canadian Institute for Health Information, 2018

3.7 million Canadians aged 15 and older reported providing end-of-life or palliative care to a family member or friend at some point in their lives. Statistics Canada, 2012

It costs approximately $4,700 per client to provide palliative care in the home compared to $19,000 in hospital. The Ontario Association of Community Care access Centres, 2010

TOOLS AND RESOURCES

This national initiative aims to integrate high-quality palliative care earlier into the ongoing care of Canadians with serious life-limiting illness. A framework, statistics, reports and tools can be accessed through the website.

This report aims to provide a better understanding of how Canadians access palliative care in the community and other care settings including access to care, quality of care, clinician preparation and patient/family involvement. Download the Report

This national campaign includes tools and information to encourage advance care planning as a process and help Canadians think about and share their wishes for future health and personal care. Visit the website 

The BC Centre for Palliative Care is a not-for-profit organization funded by the Ministry of Health to accelerate best practices, promote innovation and enhance capacity within the system and in the community in relation to palliative care, advance care planning and compassionate communities. Visit the Website

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