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ECHO Home-Based Palliative Care Community Hub
All Teach, All Learn
Bridging the Knowledge Gap in Home-Based Palliative Care
All Teach, All Learn
Bridging the Knowledge Gap in Home-Based Palliative Care
Browse this repository to access resources and tools that support your continuous learning and development of skills, knowledge, and attitudes for providing high-quality home-based palliative care. Access content from specialists and subject matter experts, along with select research articles and practical tools, to enhance and apply your learning.
2024 Theme: Unpacking the Principles of a Palliative Approach to Care
The principles of a palliative approach to care focus on living well from the time of diagnosis up until death with an emphasis on a person’s and family’s goals, values and beliefs, and maximizing quality of life. This includes the proactive assessment and management of a person’s current and future physiological, psychological, social, cultural, and spiritual needs. Holistic and person-centred palliative care requires effective communication and decision-making, along with input from an interdisciplinary team.
The Philosophy of Palliative Care and a Palliative Approach: Experts Nadine Valk and Deborah Francis led a 60-minute session exploring holistic, person-centered care. They covered early integration, team-based approaches, pain management, psychological support, and cultural sensitivity for compassionate, comprehensive palliative care. Watch video
Presentation slides by Subject Matter Experts Nadine Valk, Instructor, Mindfulness Informed End-of-Life Care Program, and SE Health’s Deborah Francis, Advanced Practice Leader for Palliative Care and Rosalyn Straw, Clinical Practice Coach. Download
The Canadian Interdisciplinary Palliative Care Competency Framework establishes a minimum national standard for palliative care in Canada. Domain 1: The Philosophy of Palliative Care and a Palliative Approach focuses on improving the quality of life for people with life-limiting conditions through person-centered care, early integration, and teamwork. Download
Nurses Self-Assessment Tool Domain 1: The self-assessment tools help nurses evaluate their understanding of the philosophy of palliative care, identify people who would benefit from it, and foster interdisciplinary teamwork to provide holistic, patient-centered care. Download
PSW Self-Assessment Tool Domain 1:The self-assessment tools enable personal support workers to assess their knowledge of palliative care principles, recognize life-limiting conditions early, and support the integration of culturally appropriate, compassionate care into their practice. Download
CHCA ECHO Learning Series Essential Skills for Palliative Care
The use of virtual technologies in home care is helping to increase access to palliative and end-of-life support in urban, rural, and remote homes across the country. For providers, virtual care offers an ideal way to balance the enormous demands for specialized palliative care and the limited number of skilled teams. For the 80% of individuals who wish to remain at home, virtual opportunities need to complement and not replace in-person care by offering convenience and the ability to address the challenges of managing advanced illness at home in a timely manner.
This Palliative Care ECHO session will highlight the Canadian Interdisciplinary Palliative Care Competency Framework domain of Virtual Care and share the findings and recommendations of a national study exploring the experiences of patients, families, and healthcare providers with virtual care.
This ECHO session focuses on the “Virtual Care” domain of the Competency Framework, highlighting the essential skills for palliative care providers in adapting to virtual technologies for better access in both urban and rural settings. Participants learn a national study on virtual care experiences and assess their own readiness through an interactive quiz on virtual care competencies. WATCH VIDEO
Presentation slides by Dr. Jessica Simon, University of Calgary. DOWNLOAD
More information about the specific skills necessary for care planning and collaborative practice can be found in The Canadian Interdisciplinary Palliative Care Competency Framework
CHCA ECHO Learning Series Essential Skills for Palliative Care
Care transitions are crucial in a patient’s journey, requiring careful planning and teamwork. These transitions often involve new teams, treatments, and a shift from clinical settings to the patient’s home, especially challenging for palliative care patients. Effective discharge planning necessitates collaboration among care teams, patients, and families to ensure safe, effective, and sustainable home care, considering both current needs and future health deterioration.
This CHCA Palliative Care ECHO learning session profiles a robust framework developed by the McGill University Health Centre and its partners which purposefully guides discharge care planning from hospital to home and can be easily adapted and applied to transition planning for individuals receiving home-based palliative care.
This ECHO learning session discusses the elements of holistic and collaborative discharge and transition planning for children with medical complexity, with broad application to the care and planning for persons transitioning to home-based palliative care. WATCH VIDEO
Presentation slides by Dr. Hema Patel MD, FRCPC, McGill University Health Centre DOWNLOAD
More information about the specific skills necessary for care planning and collaborative practice can be found in The Canadian Interdisciplinary Palliative Care Competency Framework
CHCA ECHO Learning Series Essential Skills for Palliative Care
Conversations with families exploring values, goals of care, and priorities are an essential element of high-quality care for children with serious illnesses. It is important for health care professionals to develop effective communication skills, so they can discuss serious illness and care with children and their family, especially when a goal of care is to remain at home. The Serious Illness Conversation Guide – PED is an adapted guide which integrates the unique needs of children and focuses on challenging situations, collaborating with parents, and interacting with multiple health care teams. This ECHO learning session will introduce participants to the use of a communication resource with will help home care providers better align the care they provide with what is most important to the families they care for.
This ECHO learning session discusses the unique needs of children and their families when receiving palliative care and explores challenging situations, approaches to collaborating with parents and family members and how to interact and communicate with multiple disciplinary health care teams. WATCH VIDEO
Presentation slides by Camara van Breemen MN, Nurse Practitioner, Canuck Place Children’s Hospice, Rachel Neufeld MN, Nurse Practitioner, Canuck Place Children’s Hospice, Rachael Black RN, BSN, Palliative Care Nurse Clinician Maple Ridge Palliative Care Consult Team. Fraser Health.
DOWNLOAD
More information about the specific skills necessary for cultural safety and humility can be found in The Canadian Interdisciplinary Palliative Care Competency Framework
CHCA ECHO Learning Series Essential Skills for Palliative Care
Helping patients and families through their darkest of days can cause home care staff to struggle. Continued exposure to loss, pain and suffering can lead to compassion fatigue (CF). Those experiencing CF become physically, mentally, and spiritually exhausted. Self-care is an essential skill for all home care providers so they can maintain balance, protect their mental and physical selves, create professional boundaries and remain energized to provide compassion, support and care to the people and families in the home and community setting.
This ECHO session discusses the signs and symptoms of compassion fatigue for home health care staff and organizations, and practices which can be implemented to mitigate and combat compassion fatigue. WATCH VIDEO
Presentation slides by Michelle O’Rourke RN, MA, palliative care expert and author and Cherie Gilbeault RN CHPCN(c), IIWCC, Clinical Manager, VON Canada.
More information about the specific skills necessary for cultural safety and humility can be found in The Canadian Interdisciplinary Palliative Care Competency Framework
CHCA ECHO Learning Series Essential Skills for Palliative Care
Everyone receiving palliative and end of life care deserves to feel equal, respected and to have their unique culture, history and identity honoured. Cultural safety is built on a foundation of seeking to understand and address power differentials and inequities in the social, political, and historical context of healthcare.
This ECHO session discusses the principles that home and community-based palliative programs and providers need to consider to embed cultural safety and humility in the care they provide. WATCH VIDEO
Presentation slides by Dr. Sheri Bergeron MD, CCFP(PC), FRCPC, Hospice Palliative Care Physician and Felicia Kontopidis RN, Director of Care with the Journey Home Hospice, SE Health. DOWNLOAD
More information about the specific skills necessary for cultural safety and humility can be found in The Canadian Interdisciplinary Palliative Care Competency Framework
CHCA ECHO Learning Series Palliative Care Emergencies in the Home
Catastrophic bleeding is a palliative care emergency which occurs in patients with cancerous and non-cancerous diagnoses. This ECHO session identifies patients at risk for a catastrophic bleed and the measures which can be put in place in the home to help manage bleeding and comfort and prepare patients and their caregivers.
This CHCA Palliative Care ECHO session provides an overview of spinal cord compression and superior vena cava syndrome, symptoms and assessments, and includes a discussion of approaches to treating and supporting patients and their caregivers. WATCH VIDEO
Presentation slides by Dr. Cortney Smith, MD CFPC Colchester East Hants Palliative Care Service, Northern Zone, Nova Scotia Health and Gayatre Maharaj, RN, MN, CON(c), CHPCN(C) Clinical Practice Leader for Palliative Care and Oncology, Bayshore HealthCare. DOWNLOAD
Two resources to guide and support home care clinicians and staff for providing care with tips and recommendations about preparing for a catastrophic bleed in the home.
CHCA ECHO Learning Series Palliative Care Emergencies in the Home
Advanced illness can result in painful and distressing blockages within the body’s systems. This ECHO learning session addresses blockages frequently seen with clients receiving home-based palliative care: spinal cord compression and super vena cava obstruction. Participants will learn to recognize the signs and symptoms and how to support patients and their caregivers with appropriate interventions guided by a person’s goals of care.
This CHCA Palliative Care ECHO session provides an overview of catastrophic bleeding experienced among people receiving palliative care supports in the home. Symptoms, assessments and a discussion of approaches to treating and supporting patients and their caregivers is the focus of this recorded session. WATCH VIDEO
Presentation slides by Dr. Dr. Carmen Johnson, MD CFPC, FCFP, Medical Director, Palliative Care Services, Saskatchewan Health Authority and Royanne Gale, RN CHPCN(C) Clinical Practice Specialist – Palliative Care and Oncology Professional Practice, Research and Education Team at CarePartners. DOWNLOAD
Resources to further explain spinal cord and SVC blockages and support home care providers providing care in the home. Superior Vena Cava Syndrome_STAT. Understanding spinal cord compression
CHCA ECHO Learning Series Palliative Care Emergencies in the Home
General weakness, nausea and vomiting and delirium are the range of symptoms patients may experience when blood calcium levels are out of balance. Hypercalcemia (elevated calcium levels) is a common emergency in palliative care. Which patients may be at risk? What can be done to help manage hypercalcemia in the home? Find the answers in this hour long CHCA Palliative Care ECHO learning session.
This CHCA Palliative Care ECHO session provides an overview of hypercalcemia, its symptoms and assessments, and includes a discussion of approaches to treating and supporting patients and their caregivers. WATCH VIDEO
Presentation slides from Dr. Jennifer Shapiro MD CCFP (PC), Palliative Care Physician with the Temmy Letner Palliative Care Centre, and case study by Dr. Aamir Haq MD CCFP (PC) Palliative Care Physician with the Dorothy Ley Hospice. DOWNLOAD
Resources to further explain spinal cord and SVC blockages and support home care providers providing care in the home. Cancer-related hypercalcemia- Canadian Family Physicians
CHCA ECHO Learning Series Palliative Care Emergencies in the Home
The struggle to breathe can be terrifying for patients and their caregivers. Health care providers must be aware of high-risk patients and know how to recognize the signs and symptoms of dyspnea, how to plan for care and prepare patients and their caregivers for emergencies.
Learn about the factors which can contribute to dyspnea and a discussion of strategies to anticipate, identify and manage dyspnea while providing support for the patient and their caregivers when a breathlessness occurs. WATCH VIDEO
Presentation slides from Dr. Christine Jones, Palliative Care Physician with Island Health in British Columbia, and case study by Katarina Bvoc Berta R.N. CHPCN(C), Palliative Care Nurse with Spectrum Health Care. DOWNLOAD
A comprehensive guide to the management of dyspnea developed by The BC Centre for Palliative Care.
B.C. Inter-Professional Palliative Symptom Management Guidelines DYSPNEA
CHCA ECHO Learning Session (February 24, 2022)
The Caregiver Declaration of Rights for Hospice Palliative and End-of-Life Care is a framework to empower caregivers clarify expectations and accountability for all members of the patients’ circle of care. Through the caregiver experience, learn how health care providers can become better Listeners and reinforce caregiver rights.
Applying the Emotional Intelligence skill of Listening is an effective way to embed principles of the Caregiver Declaration of Rights for Hospice Palliative and End of Life Care into care conversations, with commentary from invited caregivers Lester and Daniel. WATCH VIDEO
Presentation slides from palliative care consultants Sharon Baxter and Julie Darnay (Caregiver Coalition Working Group) and Maureen Henson, Certified EQ-i Practitioner. DOWNLOAD
CHCA ECHO Learning Session Pain and Symptom Management at Home
Emergencies among patients receiving palliative care in the home can be expected. Learn expert approaches and recommendations to guide management plans to support patients and their families during a palliative emergency.
Practical guidance from palliative care physician Dr. Cornelius Woelk and palliative consultant nurse practitioner Melanie Spencley on how to plan for and manage palliative care emergencies in the home. WATCH VIDEO
Presentation slides from Dr. Cornelius Woelk, Palliative Care Physician with Southern Health-Santé Sud, and case study by Melanie Spencley, NP Regional Palliative Consultation Team, Champlain. DOWNLOAD
This article discusses the importance of communication with patients and families and factors to be considered when making care decisions about care and end-of-life. DOWNLOAD
Palliative Care Emergencies in the Home: An Approach to Guide Home Care GO TO MODULE
CHCA ECHO Learning Session Pain and Symptom Management at Home
A proven model of interdisciplinary communication, rapid clinical problem-solving and decision-making to reduce symptom burden in high-risk individuals receiving palliative care at home.
Recording of ECHO presentation on using WCPR in New Brunswick and British Columbia. WATCH VIDEO
Presentation from Jennifer Malley, Coordinator of Palliative Care Enhancements, Extra-Mural NB and case study from Elisabeth Antifeau, Regional Clinical Nurse Specialist, Interior Health BC. DOWNLOAD
An innovative approach to inter-professional care planning and delivery in Interior Health, B.C. DOWNLOAD
Implementing WCPR : Five Practice Changes. GO TO MODULE
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Established in 1990, the Canadian Home Care Association (CHCA) is a national non-profit membership association dedicated to advancing excellence in home and community care.
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